Rami
I am a young man at the age of 20 now and I have been diagnosed in Ontario with the rarest kidney disease in the world C3GN after doing a biopsy. Before getting sick I used to play Soccer semi professionally and was living normally like every other human but now my life is being destroyed since I got sick On March 2025 and started doing dialysis on Nov 20, 2025 to stay alive.
Now I am hoping to get a kidney transplant so that I can resume my life. Because it is a very hard for me at this young age. Now I am feeling really sad and isolated every time I see the friends that I used to play with them soccer and lead the team playing without me. To add, the excessive medical appointments now are taking a huge time of my life where i have to get a blood test monthly and having to get an injection biweekly to increase my red blood cells.
The hard days I have spent before starting dialysis where I had been advised by multiple doctors In Kitchener, London and Hamilton to try multiple medications that are very expensive and they didn't help as I had no response to all of these meds and my disease progress rapidly. I am trying to spread awareness about my story hoping someone would be interested in saving my life so I can continue my live normally by playing sports and goes to College or university to learn computer science or goes with Engineering programs.
Waterloo, Ontario
Age: 20
Blood Type: A
Currently in active transplant status looking for a donor.
Reason for kidney failure: C3GN and Alport Syndrome
Current kidney function: On dialysis since Nov 2025